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Profile

* Cancer type: NeuroEndocrine Carcinoma- Renal Carcinoid
* NET type : Renal Carcinoid (horseshoe kidney)- Pathology- Neuroendocrine Carcinoma, Intermediate Grade 10/10 HPF Primary, 20-30% Ki Index- Mets
* Diagnosis year: Feb/2002; however a scan showed an enlarged lymph node in Jul/2001
* Home: Midwest USA. I am currently receiving PRRT treatment in Germany.

How I Survive Cancer:

My detailed information and plenty of links and information are documented in my blog. http://www.renalcarcinoid.com

I was diagnosed Feb 2002 with a diagnosis of neuroendocrine carcinoma, intermediate grade (later classified as a renal carcinoid).

I have seen/worked with many carcinoid MD's in managing my very rare disease (Renal NET Primary). I am currently working with a MD in James Cancer Center, and with some of the most brilliant physicians treating this disease in Bad Berka Zentraklinik, Germany (Dr Richard Baum).

My blog/web site is entitled "My Journey thru Neuroendocrine Carcinoma Cancer Hell & adventures walking thru it!"

I realized in 2008 that I needed to find a way to "get back" at this disease that has managed to mess up my life totally. The best way so far has been via my blog, become a patient advocate, share medical information & raise money for carcinoid research.